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East End Doula Care

End of Life Guidance and Support 

Practically, Emotionally, Spiritually and Creatively


Author - Legacy Creator- Workshop Presenter - End of Life Doula 

Certified Senior Specialist - Speaker/Consultant 



What is an End of Life Guide?

An End of Life Guide or End of Life Doula are one in the same.

 

Doulas offer Non-Medical Guidance and Support both Practically, Emotionally and Spiritually. We are Givers and Advocates who are there for 

terminally ill patients and their families. 

We can be with you from the onset of a diagnosis all the way through the end of life offering education, resources and friendship when you need it most.

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The key right now is to help bring balance into an unbalanced

 time in your life.


We're all unique having different wants, needs and desires. End of Life should be no different. During this time we can plan and map out how your story should unfold, and on your terms. 


We do our best to make your timeline beautiful, peaceful and complete. 

Most of all, we are there for you. We help with legacy projects, making amends with family or just to hold your hand. We help you walk your journey all the way through.

 Our "FAQ's" page will give you a picture of what an End of Life Guide can offer you.

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East End Doula Care offers Elder Care Assistance. 


Our senior population has skyrocketed and will continue to do so with our lives lasting well into the hundreds. Please see all that encompasses this milestone

 and how we can help fill in the gap at exactly the right time. 


East End Doula Care facilitates many workshops and speaking events in local venues, corporate facilities, assisted living and nursing homes, hospitals, private homes and so much more. Please visit our workshop page. 


I am the Author of "Remember Me - The Story of My Life". 


I utilize this book in a "Celebrate Life and Legacy" workshop. I work on Creative Legacy Work with clients not only during end of life, but so much earlier. We all have the stories and the importance of leaving them on paper while you are younger and vibrant. We are living today in a digital and disconnected world. Everyone of us has opportunity NOW while the memories are clear and concise to do our part and leave our thumbprint in history. 


Publications 

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National Aging In Place Council

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Sag Harbor Express

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Newsday - Susan's Journey as an End of Life Doula


End of Life Doula Benefits - (See more under "SERVICES")

Our Support in 3 Phases

Phase 1 -


In the first stage, we call it a Shock Phase, there is a terminal diagnosis. During this time, both the patient and their loved ones are in shock with the diagnosis. The whole family is going through so many different emotions. These feelings can range from sadness to anger, anxiety and denial. There is fear and loss of control.

Hopefully the person has family and a support system surrounding them. Life is about to change for everyone and their feelings and emotions are scattered on different levels at all times. News like this feels like the beginning of a roller coaster ride with fear in not knowing where the ride will take you or where your ride will stop.

When an End of Life Doula comes into the families life at this point, they establish a trusting relationship with both the family and the person with the diagnosis. A Doula brings a certain calmness and peace into their home that sets the tone to navigate, guide and support you throughout your process.

Learn More

Phase 2

Phase 2 - 


This is the phase where I bring in the creative legacy services I offer. It's the second stage when the person's pain is usually under control. The family has begun to have conversations with one another about what is taking place. In this phase, we can work intimately with each other. These things are up to the person, enabling them to come to a full circle in their life. Talking, communicating and spirituality are part of the process. Saying goodbye, visits with family and friends and forgiveness are common now. Sometimes acceptance is hard for different family members, this is something we work on mending.

Reviewing and reflecting on the person's life are things that help come to terms with the diagnosis. Tying up loose ends, gifting, writing stories. Creating videos and audios, leaving love letters to your family. We plan life celebrations in advance to tell stories, laugh, cry, listen to music and celebrate your life now, with you here. Just being there with the person and their family gives them a feeling of comfort and relief. They feel guided and supported with anything they need. This could be more for one person and less for another. This is their life and it should be on their terms. 

Learn More

Phase 3

Phase 3 - 


This is the time right before the person dies. They are transitioning from our world across the bridge. This can take anywhere from hours to days. As a Doula, we are aware of how the body physically shuts down. Believe it or not, most of our bodies shut down the same way. Everyone doesn't go through these steps at the same exact time, however, being able to identify them for the family brings a sense of comfort and control.


I offer them suggestions along the way, be a liason to the hospice and medical teams and lighten the anxiety for the family in the moment as the process is unfolding. We make sure there is peace and calm in the room. We incorporate the person's favorite things, music, candles, scents and more. We make sure everyone who wants to be there, is there.

There body will slowly begin to shut down and being able to remind the family about these steps and the processes we spoke about prior to this day, can be extremely comforting for all.


A Doula can stay with you through the last days, holding your hand on this journey or sitting alongside the family and supporting them. We only do death one time. With a little pre planning your journey can be a beautiful and celebrated one that is not filled with fear, bitterness, loneliness or isolation. 

Learn More


The benefits of bringing in an End of Life Doula:


a. Everyone has an increased sense of control through planning. We educate you and take the anxiety away. Be sure to ask us about our VIP Organization Project. Whether Doula Care or Elder Care, Our unique project will combine all paperwork, accounts, passwords, phone numbers and more into one secure place. 


b. Better symptom management. A Doula knows what to look for and can teach you little things to help make the patient feel more comfortable and more managed. 


c. We provide downtime for caregivers or family members. The Pilot always says,"Put your mask on first". If you don't stop, breathe and walk away, you are no good to yourself or anyone else around you. Take a minute, we are there for you.


 d. The experience of losing someone you love is like no other. We listen and reprocess the experience, both good and bad. We provide you with alternative resources, give you the support you need and stay on, depending on your needs. Most of all we are a presence to guide, support and help with anything you need.


"When most of us think about death, we feel deep sadness and fear of the unknown. By fearing death, we miss the countless opportunities in our everyday life to open our hearts and minds, and for savoring this sacred and natural milestone.

Release your fear and live for this moment, this is all we really have."  -  Susan Capurso


Great Video on End of Lifehttp://bit.ly/2Mvp4Lu






Facts

Years ago we weren't so busy, far apart or unconnected as we are today. It used to be a natural process to pass away at home surrounded by family. Times have changed. Saying goodbye in a cold hospital room with bells, whistles, machines and strangers, is not a loving or natural way. We can choose. With a plan in place you can leave the world with the love and closeness 

of family and friends surrounding you.


Our Senior population is larger than ever.

 Did you know...

FACT 

​There are 75 Million Baby Boomers over the age of 65 and 20% of them do not have children 

FACT

9 out of 10 people want to be kept at home if they become terminally ill

FACT

The # 1 concern of a person dying is not becoming a burden to their family members

What our clients are saying

When both of my parents were gravely ill, the only thing I was sure of was that I needed help. East End Doula Care gave our family the guidance and support that we needed so badly. Susan's professionalism and care made the passing of both

 my parents an organized, caring and loving event. 

Richard Perrillo, East End Builders


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